Supporting Aussie Kids with Kabuki Syndrome was created 9 years - TopicsExpress

Supporting Aussie Kids with Kabuki Syndrome was created 9 years ago due to a lack of support here in Australia, since then our Team has grown; Stacey McKiernan and Darrin from Victoria, Mel and Steve Carey from NSW, Jennifer Lesley Holdsworth and Paul from Tasmania, Sandra Murison and Brendon Withers from Queensland. Our members are not only from Australia and stretch around the globe and Silvia Sangaletti Trawny Represents our Europe families, Angela Rushnok-Huth Represents our USA families and Linda Connon Represents our UK families. Our dedicated team support nearly 300 families from around the world. Next year we celebrate 10 years. Every year on the 23rd of October we celebrate KABUKI SYNDROME AWARENESS DAY; each family in their own way have a day to celebrate our very special family members who have KABUKI SYNDROME. The SAKKS site has ribbons for sale (link below) - so wear a ribbon, change your facebook profile pic, fly a kite, blow ups some balloons; but join us while we take a minute to reflect and celebrate. sakks.org/donate/buy-a-ribbon

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