6:25 PM, November 3, 2014 It is a little tough finding a balance on many different levels of what to write. Too much information at a later point could make Andrew feel like his privacy was invaded. Being too upbeat could downplay the serious issues that we are dealing with and will deal with in the future, and potentially lessen the chance for prayers that are aiding in Miracle Mans healing. But too much negativity could drive some away-because lets face it, living day to day in the modern world is stressful enough. It was hard to hear that fluid has again begun to collect at the base of Andrews neck and prevents him from being moved to rehab. It was news I didnt want to give Joe--he is my rock and I heard the frustration in his voice as he asked questions. We just sit tight for now and wait to see what happens. Braunschweig men are NOT good at waiting...be it in traffic jams, restaurants, or for their mom/wife. (Neither Joe, Andrew, or Tyler have ever gotten better at waiting on me-and I have given them plenty of practice.) Today Andrew had a repeat of a cognitive assessment. It helped remind me that although we have seen amazing advances in his physical and mental abilities, he has a long road ahead of him. He had difficulty following directions on what task to do first. Highly unusual for him. When he had to draw a clock face-I kept my face averted most of the time. I didnt want him to see my facial expression watching him struggle. He was able to fill in the 12, 3, 6, and 9-after that he was stumped. With direction from the therapist he put in the other numbers....but when asked to draw the hands that would show the time 11:10 he ended up putting 1:00. He was very frustrated. He verbally said exactly where the hour and minute hand were supposed to go, but he couldnt get it right on paper. Asked to say the numbers 2,4,7 backwards-he said 7, 2, 4. There are other examples I could give, but you all get the point. His score improved from a few days ago, he got more than 50%, but these are very basic things he is being asked to do-far easier than living on his own. Please ask that once we get to rehab, he will make the significant cognitive gains to be on his own again and have a chance to advance as he wishes. Physically we need prayers for the fluid to drain on its own, for swelling in his throat to go down, and that the muscles near the throat and windpipe get stronger. He also has a little bit of a scissor walk having that needs to be eliminated. PLEASE, PLEASE pray that we can get him into a shower. It would lift his morale quite a bit. I also need prayers for patience. EVERYTHING has started to wear on my last nerve today. The new room has a floor that seems to be sticky. Housekeeping came in once but the problem is still going on when anyone walks on the floor. It sounds petty, but it has put me into sensory overload. I finally snapped and went down and asked that they figure out whose alarm has been beeping for thirty minutes. I could listen to multiple alarms of Andrews going off for longer than that, as long as I knew it wasnt anything critical...........but now......I am just cranky. Thank you for all the well wishes and prayers and comments. They lift me and make me feel a little connected. It is awfully quiet with just Andrew and me and he spent most of the day being a sleeping beauty. But I am okay with that---it was like watching him sleep when he was a baby. Just kind of warm and wonderful. The glass is half full because normally if a mom watched her 25 year-old sleeping it would be just plain creepy. Vaya con Dios, Robin
Posted on: Tue, 04 Nov 2014 01:47:16 +0000
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