A very interesting insight into how people living with rare - TopicsExpress

A very interesting insight into how people living with rare diseases can give valuable knowledge and partner to find much needed answers. As quoted “We try to help these patients with rare diseases .... Sometimes we are able to, and sometimes we’re not—but these children are teaching us a lot we didn’t know about ourselves. And we can use what they are teaching us to help other people.” Patient empowerment at its very best!

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