Backwards not forwards... Picture is Cannon day 29 days ago the day before we became inpatient and then today..... Michael and Cannon had a really rough night . My heart ached as Michael gave me the run down on their painful night. Cannon had walked for me the day before yet couldnt even walk a few steps for Michael - he was bent over in pain and limping, he cried and ached all night and Michael grew really concerned. Michael pulled the team ( doctor, charge nurse etc) in the room ( I love that man so much) at 3am... When it comes to our children that man doesnt give a crap if he upsets anyone or what people think of him - truly one of the things I love most about this man whom I call my husband ( ok before I make you all sick I will stop). They decided he needed a CT of his stomach area incase he had an infection. Michael had to leave for Orlando first thing so I took Cannon to do that today - they didnt sedate him and he was petrified he cried and tears rolled down his face and we couldnt do it as he had to be still. So we need to do tomorrow. My heart just aches for him! I wipe tears from his eyes so many times a day - I say mummy here, no cry buddy its okay! Mumma here... He cries when we do mouth care three times a day, when I bath him with these horrific wipes, when I take him out bed, when I moisturize him .... It never ends all day long. He is so fed up now and I just want to pick him up and walk out the front door with him and pretend he doesnt have cancer. I have read many poems saying cancer cant do this cancer cant do that and thats all great and flowery and poetic so to speak but its not the reality... This is the reality: Cancer has taken over our lives Cancer has my family living in two cities But more than that.... Cancer has taken my sons smile Cancer has taken my sons laugh Cancer has taken my sons appetite Cancer has taken his spunk Cancer has taken his patience Cancer has taken his hair Cancer has burnt his skin off Cancer put him through a 13 hour surgery Cancer has made him basically live in a hospital for 6 months Cancer has stolen so much from my son!! I say all this because I want all who read this to take action! As one little girl said in the truth365 video and Im quoting here talk is bullshit we need action. Things need to change for these kids! I promise if you lived one day in this crazy cancer world you would understand but I cant show you that nor do I wish that on anyone. So please take me at my word ? Can you do that? Take me at my word! Tell one person about kids cancer and lack of funding! St Baldricks and Alex Lemonade stand are wonderful places to donate to - I encourage you to give up one gift you would have this year and place 5 bucks with one of these charities ....they fund kids cancer research only! I know many cancers need help and I support those - but these kids are so underfunded . Take my word for it please....they deserve better and I believe I and you combined can do this! I have failed these kids as many of us have. You and I were unaware before - now we are aware! We need action!! Talk is bullshit as the ten year old girl with brain cancer says in the truth365 video - that ten year old is no longer fighting she is in heaven - the video was only just made. Today 7 more kids died of cancer - with an average age of 8. For those of you still reading this... Thank you! I admire you! Its not easy but nothing in life worth doing is! Teamwork - lets beat the poop out of kids cancer - for our kids and their kids! Please hug your kids longer, read to them longer, make bed time just a little later, give them a little extra treat and above all every single day kiss and cuddle them and tell them how proud you are and how you love them so! Life can be short and the train can hit at any time day or night. Live life with gratitude for all things small and big! Cannonball kids cancer Thankful for the fight Pray hard
Posted on: Tue, 12 Nov 2013 23:31:05 +0000
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