Brylee is a second grader at Calvary Chapel School. This is from her Mom and Dad: Sadly, we learned through Brylees recent visit to the hospital with some facial paralysis and a terrible ear infection that her Leukemia has returned. While she was under anesthesia for her surgery to relieve the pressure on her facial nerve from her ear infection, they did a bone marrow biopsy and discovered the Leukemia is back. Her blood samples, so far, were still looking clear at her most recent visits, and her MRI results dont show any tumors on her brain or spine, to which we are extremely thankful. Because of the rapid growth of her last tumors, the doctors are moving quickly to begin her treatment and again achieve remission. Brylee went to St. Lukes Childrens Hospital this morning to have a long term port (Hickman) placed for her IV access over the next few months of treatment. She will begin Chemotherapy again tomorrow and will be in the hospital for the next little while. This time will be a little different, as Brylee will undergo 1-3 cycles of Chemo to achieve remission, then she will need to go to a bigger hospital (still to be determined) for a bone marrow transplant. As you can imagine, there are a lot of decisions to make, a lot of plans up in the air, and a completely heartbroken family trying to navigate through this process. Please know that each text, call, message and prayer are received and appreciated, but there is so much to be done, it is hard to respond to them all. Brylee is a fighter and shows such strength through all of this, that we will continue to be prayerful for quick remission, an exact bone marrow match, and ultimately, a complete recovery. Many have asked what they can do to help, and at this time, all we can ask you to do is pray. Pray for Brylee to have grace and peace and to not be afraid. Pray for Rob and Monica to have strength. Pray for Zayden to understand something that the rest of us dont and to not lose faith in our loving God who will see us through this. As time moves on, we will give information to those of you who wish to be on the Bone Marrow registry, for not only Brylee, but any other person who finds themselves in the midst of this battle. Thank you all for your love, and we will try to keep you updated the best we can. We keep reminding ourselves, We can do all things through Christ who gives us strength. Philippians 4:13 There will be a Be The Match donation drive for Brylee on January 31st, 2015. You can find the link to that information on the Facebook page and we will also be sending more information out when the date gets closer. You can follow Brylee’s Battle on Facebook for updates. https://facebook/pages/Brylees-Battle/638042202873694
Posted on: Tue, 16 Dec 2014 21:54:15 +0000
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