I cant believe its Day 3 of the 79 Days of Duchenne. Please share, like & comment. Early 2014 my husband and I were discussing how to get awareness out side the Duchenne community, driving home from an event, the 79 Days of Duchenne project was born. During the process of finding people to participate, I have met some really inspiring, talented, all around amazing people....with hearts of gold to back it up. One of the very first videos I received was from Jonjo Lyons. He reworked the lyrics and melody, and then rapped it - can you say awesome?! Thank you so much for your wonderful video, and being a voice for Duchenne. Please take the time to thank these artists who are being a voice for all boys with Duchenne. Duchenne doesnt affect their lives personally, but they are personally taking the time to help change something that is affecting our. Together, we can Cure Duchenne. https://youtube/watch?v=TjYZ_rOH0VE
Posted on: Fri, 11 Jul 2014 14:04:38 +0000
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