I know HLHS is a rare heart condition, but I refuse to believe so. I have come in contact with so many people since Maes diagnosis who have also been touched by this congenital heart defect. Recently, on two separate occasions, Buck Bradberry and I were approached for advice because they just found out their unborn child has HLHS. Up until this point, I have mentally pushed any heart related research to the back of my mind because it brings back so many memories I do not wish to revisit. BUT, I know that God gave us Mae and her precious heart for a reason and if I can help even just one family out by giving them hope, then it is entirely worth it. The American Heart Association of Greenville has asked for Mae to be their spokeschild for their annual Heart Ball in February and we gladly accept, for our mission is to raise awareness of this defect and to aid in the research that will hopefully provide answers. Mae is also currently in a study at MUSC that follows the child from pre-surgery to post-surgery and beyond. We hope that these efforts will lead to some answers that will help save many lives. Below is a video created from a fellow heart mom that gives you just a snapshot into the experience these families go through… #prayformae #heartmomonamission #americanheartassociation
Posted on: Fri, 19 Sep 2014 20:10:52 +0000
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