I know Im always complaining but I really want Fb input on If anyone else has had these issues or this back thingy looking thingy.......THIS KILLSðŸ˜ðŸ˜ðŸ˜ðŸ˜SOMEONE HELP ME DIAGNOSE THIS SEEING AS 32+ DOCS AND SURGEONS CANNOT TELL ME WHAT THE HECK IT IS AND WILL NOT BIOPSY OR HELP ME😡😡😡I just dont understand why no doc or anyone can tell me wtf it is or why I have the following symptoms plus more and this is my #spine and #brain: *seizures In my sleep *fluid leaking from my nose and ears randomly, blood too *severe spinal cord compression, disks bulging and pain *vision loss and twitching in one eye *severe vertigo *ringing in ears *heavy head to the right *vomiting at least 3x a wk *migraines *optical brain lesion *high blood calcium *heart murmur/palpitation *loss of balance and muscle spasms/legbuckling *facial twitching *high fevers up to 103.5-104 *night sweats *chronic sweats fatigue and chills and chronic infections too plus daily diarrhea and hemorrhoids that never seen to go away along with rectal bleeding. I also keep getting mrsa and am on strong antibiotics to frequently in my opinion. Any who, here is what no one seems to know what it is::1st pic was taken thur and wasnt too bad with a small lesion 2nd pic is NOW and its the size of a goofball and hasnt ever looked this yucky. Under my skin.. Between scapula and t-spine... Sometimes banana shaped and starts at neck goes down to low t-spine... Veiny feeling and squishy and its agonizing pain just for my shirt to touch it and worse when pressed on... Sometimes its the size of a dime and not red or super painful and others the size of a goofball or even baseball, painful as heck and sometime has lesions or bruises and I literally cannot deal with the pain and am not one for pain killers... ER wont help and as I said orthos.. Docs.. Radiologists tell me they dont know what the heck it is and thats that! Im not ok with that bc I am in pain and it should not be there. I do have c-spine damage but surgeon claims that wouldnt make this happen. I also had reconstructive shoulder labrum and bicep operations but again they claim its not from that either nor my 5 breast reconstructive augmentations or mini tummy tuck either. Scans and MRIs dont show a tumor so they wont biopsy. Also it takes for frickin ever to be seen by anyone and I dont think I have that time to be honest... Not with all my medical issues THAT ARE REAL AND I CAN PROVE!!! I know theyre bizarre for being 28 years young but FML I guess. Fk my immunities?! I have no immunities to hep B or C yet my Ana panel they wont help with either. I have spoke rudely and rejected certain care but am ready now!!! In ready for any tests or anything!!! Imm so scare and so young and my daughter expressed to me how shes in fear of nana dying of cancer and thinks I will be next bc no docs cant help me 😥CAN ANYONE HELP ME?! ANY DOCS ON MY PAGE?! ANYONE KNOW ANY HEADHONCHOS WHO CAN GET ME ADMITTED AND WORKED ON BY A TEAM TO FIGURE OUT ALL THIS AUTOIMMUNE, NEURO,ORTHO,CARDIAC AND GASTRO ISSUES?! ANYONE?!? PLZ!!! Ever since giving birth in 2009 after the epidural, my health has plummeted and its not only effecting me, its effecting those I love and most of all my wonderful children who I wish I could be more active with... My poor babies always say Mommy I wish you could get betterPLZ HELP ME!!! Again, my bloodwork comes bk fine so no body will test for ALS, autoimmunes or cancers(which run in my family terribly as well as ALS) nor give me full body scans just to see coz theres obviously something medically wrong, yet they keep telling me you have an autoimmune and your case is complex or none of this is real. I have seen psychs and been evaluated. Obviously its real bc I have symptoms others see so wtf?! I also have even accused by hospitals of faking seizures!!! How does one fake a seizure??? GAH! Im at wits end here and dont want to be tired and sick anymore and furthermore die bc some MickeyMouse docs dont wanna treat properly just bc I am a PAIN IN THE ASS. Thats no reason. Ima pain bc I get NO ANSWERS and thats so frustrating. Especially when Im weak and have to rely on my mother who has lung cancer to come help with my children and such or have my hubby take off work... Too much of my life has been taken away bc of misdiagnoses and sicknesses plus traumatic events and I deserve a break. I been through HELLLLLLL my entire life and just want to live happily with my children and give them the life I didnt have. I have been through a divorce, watched my parents fight, witnessed my brothers murder, was gang raped, pulled out of school ++++ and now all this health and no docs care to help me LIVE bc all they care about is $$$$$. #bullshit #healthcaresucks I have bcbsppo for crying out loud... Its not like I am asking for free flippin care!!! I had a referral to mayo clinic but that fell through... ðŸ˜ðŸ˜ðŸ˜ðŸ˜ðŸ˜ SOMEONE PLZ HELP ME!!!!!!!! ••••ps so sry again for this long ass rant and complaints but I am at wits end, real weak and it doesnt hurt to ask the 500+ Fb folk if they have connection or can help me figure this out!
Posted on: Sun, 20 Jul 2014 05:13:29 +0000
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