I often hear/read parents say, My daughter has Rett, but Rett - TopicsExpress

I often hear/read parents say, My daughter has Rett, but Rett doesnt have my daughter. However, there are days that Rett has me. It will consume me when I least expect it and holds on to my thoughts for as long as it can. Sometimes I want to tap out. I want to just give in to the sadness and the anger. Most of the time I try to keep fighting. Today Rett has me in a choke hold. God knew it did and when I started to give into the tears and emotions my phone rang. It was a local business saying they were going to donate to #KnockOutRett. Then this song came on the radio. Message received. Time to go for a run and get myself refocused.

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