Proposed Agenda for tomorrows Rare Disease Legislative Advocates - TopicsExpress

Proposed Agenda for tomorrows Rare Disease Legislative Advocates Webinar: *21st Century Cures – John Stone, House Energy and Commerce Committee Staff *Ask Your Candidates! – Tim Tassa, Research!America *Right to Try, state-level legislation – Jann Bellamey, Science-Based Medicine *Report: The Cost of Prescriptions under the ACA – Matt Grabowski, PhRMA *The Open Act - Julia Jenkins, The EveryLife Foundation for Rare Diseases *Tribute to Champions of Hope – Carrie Ostrea, Global Genes Project

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