So, just to vent, and hopefully provide something useful for others to consider when speaking to someone with MS, I’ve made a list of things that should NOT be said to someone with multiple sclerosis. You don’t look sick You shouldn’t drink diet coke OMG this diet cures MS OMG this vitamin will leave you symptom free Aren’t you gluten free? … You should be Aren’t you too healthy looking to have MS Try this herb; it helped my cousin’s uncles’ sister’s friend who has MS Well aren’t you taking your meds?? (Yes….) Then why is your MS bothering you still? Are you contagious? You shouldn’t eat meat… What did you do to get MS? How DID you get that? You must’ve had mono If the heat bothers you, don’t be in it… or move… I heard a vaccine caused it Can’t you just walk slower? Why are you dragging one of your feet? Why are you always so tired? It can’t be that bad… Well if you’re in remission, why are you on meds? If pregnancy makes it better, why don’t you just keep having more kids! That celebrity with MS seems just fine, why aren’t you? Do you take enough vitamins? Are you sure it’s MS…? How can doctors be so sure? Stop using MS as an excuse… you can’t feel that way ALL the time. Maybe you just need to try a little harder. Why don’t you try a different medication, that doesn’t cause so many side effects? You seemed fine the other day… You slept ALL night, how can you be so tired? (This is for the younger MS’ers) WOW… you take more medicine than my grandma… MS… isn’t that the muscle illness? (No. That’s MD = Muscular Dystrophy) You daydream a lot in the middle of a conversation, that’s rude! (No… it’s cognitive issues) Why do you keep forgetting things? Oh TRUST me… I know exactly how you feel! Oh, you should just exercise more… It really can’t be that bad… Oh… and when they compare how they feel or have felt in the past, with your symptoms… like it’s the EXACT same feeling… I’ve come to learn that when some people (not all) ask how I’m doing… they are just doing it out of politeness… they don’t actually want to know how I’m felling, so I simply respond w/ the phrase we are ALL too familiar with… “I’m fine”
Posted on: Thu, 27 Jun 2013 05:02:49 +0000
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