Update!! This week is somewhat busy!! I have my kids and nephew with me for spring break!! I am very limited to my updates due to my time at the hospital! However, we are doing great!! Her echo was stable with no change, her PDA is still very large showing no signs of shrinking- her head ultrasound remains stable with a slight ventricle decrease-:) her chest X-ray looks better than before but still hazy- her X-rays will look like this probably for awhile!! She is gaining weight but not as quickly as they would like- her eye exam is stable from last week, revealing moderate rop- her top of her bed was raised today-:) shes doing good with her body temp- shes tolerating her feeds at 26 ml 28 calories very well!! She continues to take her pacy very well!! She did amazing during her taste! They said she did a great job!! Suck swallow and breathe is very hard, so it will take time!! Tomorrow at 9:00 am I need everyone praying for her MRI! After MRI she will be weaned to 2 liters if she can tolerate it-more tasting tomorrow- if all is well then trying a small bottle Friday!! Shes doing great!! Please keep praying!! We have beat the odds and I pray we continue to do so!! Without prayers we would not have made this far!!! Reality is here tomorrow!! This means 2 things.....we are big enough for MRI and reality of what her clinical diagnoses are!! Prayers are needed!! Gods got this!!
Posted on: Wed, 16 Apr 2014 21:40:59 +0000
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