Well all good things have to come to an end at some point dont they?! Where Hollys blips used to last 2-3 days every couple of weeks has now turned into 2-3 good days every week. Her sleep has progressively got worse and its becoming a nightly struggle again. Shes taking hours to fall asleep (eventually falling asleep anywhere between 2am - 5am) but last Wednesday she just didnt sleep AT ALL! We were really excited that Holly was going to her first School Christmas Disco on the Thursday night too, but sadly it didnt happen as she was just wiped out. Craig and I are just exhausted as we cant just switch off and go to sleep knowing shes suffering. Not that Holly lets us go to sleep anyway. I have put her in my bed hoping that the comfort would help her drop off, but instead its given her an excuse to pull at my face and hair, and try to climb on top of me!! Its just a little bit annoying 😁. Anyway, Holly went back into Sick Kids Hospital last Tuesday and Wednesday for her IGGs after the previous weeks fiasco, so Im hoping they kick in soon and give her a much needed boost to see us through Christmas. In the meantime we are going to have to mount the TV in the living room on the wall. Holly is constantly standing up to touch & kiss the screen when its one of her favourite episodes of Dora on!! As she has no balance she supports herself on the TV unit or on the actual TV. The TV rocks back and forth sometimes and were obviously concerned itll come crashing down on top of her. I mean, that TV cost a fortune!! Lol - just kidding 😂😂.
Posted on: Sun, 14 Dec 2014 10:29:37 +0000
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