Well, today didnt go so well :( Dylan lost 2 lbs, and his mitral valve is starting to leak. Its a small leak, and will likely take months to progress. Dr. Kochilas is getting in touch with Dylans Boston surgeon, Dr. del Nido. They will discuss if replacing the valve is the best option and where that would be done, or if we should start the heart transplant process while Dylan is healthy enough to get a transplant. First things first, we have to get that boy to gain some weight! Please, please pray for a good plan and some good weight gain.
Posted on: Mon, 28 Jul 2014 23:26:52 +0000
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