You’re too young to be sick, You don’t look sick, It must be - TopicsExpress

You’re too young to be sick, You don’t look sick, It must be nice not havin to work, It’s all in ur head/ u’re jst stressed, jst push thru it. Oh man. If u only knew. . Invisible illness dont affect ur appearance, but they affect how ur body functions n feels. Every day, for the rest of ur life. Bein Young does not always equal healthy. I get this a lot, I guess they wanna make me feel guilty or embarrassed for havin an illness I have no control over. Must be nice, oh really? when u are forced not to go to work when u want to be there, it is a whole different story. I have always wanted independence. Personally, I loved work n hated every day I wasnt there. Believe me, it is not nice havin to stay home ..It’s fun to watch TV for a day or two- but after that- you feel trapped. I would gladly trade in my symptoms for a full time job. just push through it.” The problem with this statement is the assumption that i am not already pushin myself. Every day, I push thru my symptoms. If I didn’t on my bad days I would literally not eat, walk, or shower. you literally think to urself “how much energy will that take?” for every single action (brushin teeth, combin hair, standin to do dishes, puttin on makeup, cleanin, drivin, etc.).. my kind of tired is not the same as a healthy person’s kind of tired. If I push myself past the amount of energy I have in a given day, the consequences are pretty bad.. a simple I Believe You u would be surprised just how much that will mean!!! Although I’ve been placed inunfortunate circumstances, and wish i could be the fun, outgoin silly person full of dreams that i was a year ago and now I am disabled and feel lucky if I can get myself up from bed...And though this is not how I envisioned my future, I have accepted that this is my life and I’m thankful for another day to be in my kids life,, I could have been dealt a worse hand. I have accepted that not everyone will understand my situation but i will have to fight to be the best i can be... Like the saying goes, God only gives his toughest battles to his strongest soldiers.... #NarcolepsyNotAlone

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