How many of us have faced people who just dont get it that we are really sick when they only see us on our good days? For example, I told my physical therapy people about my disease and the crashing and so forth associated with my IVIG and such. Then I crashed before my IVIG and still tried to complete PT. This time they reduced my various exercises to 3 min instead of 5min. I was able to do that. After my IVIG I still was crashed and hadnt rebounded for about 5 days. They got to see me slowly recover. This week they were so nice to me. Its like they finally understood the hidden disease that I had and were so glad I was feeling better. It is a slight change when you know that a person gets it but it means so much to me. Its like I can relax knowing that they understand and dont wonder if Im lying/ making stuff up/ ect.
Posted on: Fri, 29 Aug 2014 17:38:59 +0000
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