For the next few weeks I will be introducing you to the Stillbrave 100. My motivation, their smiles, their fights, their lives.....and in some cases their deaths. Get to know them reach out to them and their families let them know that we care!! Connor White mile#98 Tom - thanks again for the support. From Beth and me: Connor Robert White was born on July 6, 2012. He was such a happy baby and he never cried. On Thanksgiving Day 2012, however, something changed. He started throwing up in the mornings, but then was fine and happy again. Over time, he became inconsolable and severely dehydrated from constant vomiting. There was clearly something wrong. After many trips to the doctors’ office and the ER, we knew something had to be done. We decided we were going to the ER and we were not leaving until we had a diagnosis. That evening, Connor was diagnosed with a brain tumor. We found out on Christmas Eve that it was an Atypical Teratoid Rhabdoid Tumor (AT/RT). They told us not to look at the stats, but how could we not? Less than 10% survival rates under 3 years of age, but many of those that survived had significant long-term damage from the treatment and ALL required radiation. Radiating a brain at any age is risky, but radiating the brain of a child under 1 year of age almost guaranteed permanent brain damage. The only hope was that the cancer had not metastasized. His initial post-operative MRI looked clean, but we knew the surgeon had to leave a few cancer cells on his brain stem. At his follow up MRI 17 days later on January 4, 2013, our greatest fear became reality - the tumor had grown back and had metastasized to his spine. We knew at that moment that Connor would not survive. Connor passed away on January 6, 2013 – only 6 and 1/2 weeks after his first symptoms and on the day he turned 6 months old. Even with all of this, Cancer does not define Connor. What defines Connor was his contagious smile and amazing strength throughout his all too short life. Connor has been gone for over a year now. It is hard to put into words what the grief feels like. Some days you think you might be okay, and others the pain is still so intense it takes your breath away. We are forever changed. In some ways, this experience makes you appreciate your blessings so much more, but at the same time, it makes you so angry and hurt and sad. Connor didn’t deserve this – no child does – no family does. https://facebook/ConnorCures
Posted on: Tue, 20 May 2014 02:26:31 +0000
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