18 years ago I gave birth to an amazing tiny itty bitty baby. He was the spitting image of his daddy. That boy grew like all little boys do but things begin to change. Normal abilities were very difficult for that boy; Skipping, running, walking, jumping, climbing, etc took great pains to do. His walk became awkward and different so other kids made fun of this little boy, teachers tried to force him to walk normal picking on him if he couldnt. He became a sad little boy with little confidence, this boy didnt understand why. The older he got the more he was bullied and put down. People mocked him and many wouldnt even be his friend. He learned by the age of ten that he had a genetic disorder but he didnt know what that meant. He had fears and doubts but life was moving on even if he was standing still. He decided to put on a smile and the tests and procedures he endured in search for answers were hard, scary and endless in his mind. His parent didnt know what to do or say because that day they believed their child had been handed a sentence of a short life and were unsure how to deal with let alone explain how this ripped their world apart. They fought hard for their child but no answer was in sight, physical therapy, muscle biopsies. DNA testing, MRIs, Broken bones, and so many doctor visits that they truly believed no one would ever know what was wrong. Finally they decided to just stop the tests, stop the foolishness and fix the one problem that caused their boy so much pain. They decided to have his contractors in his ankles fixed so he could stand flat footed once again. so many years of him walking on his toes, so many years of pain, cramps, and exhaustion they couldnt endure it anymore. Knowing their baby boy could die was the hardest thing for them to face, not knowing how long he had, not knowing what he had exactly was heart-wrenching. They find out in a flash that his heart is bad, they truly felt like the world was falling in around them, what else could possibly go wrong wasnt his life hard enough why did he need more stress, more road blocks, more fear. But the boy he smiled, and smiled through it all. He never showed fear, he never showed doubt, he never cried. his strength gave his parents strength. that boy decided his grandpa lived just fine with a pacemaker and so would he, he didnt look at what this meant for him or what it would keep him from doing but rather he couldnt do most of those things before he got his pacemaker so why would it bother him now? Such clear focus thought of his life was amazing to behold. His heart is always beating 280-290 beats a minutes in his atrial chamber, his ventral chamber lives in sweet bliss to the chaos above because he has complete heart-block. He will take warphine the rest of his life, but these things dont bother him he just chooses to shake them off. He went through severe gut wrenching pain when he got his ankle surgery, six months of pain and wounds but did that stop him or remove his smile nope he struggled on in spite of it all. This boy who is different who has endure so much bullying, insults, anger, hatred, and hardship from other people in the world chooses to smile through it. He chooses to walk with Jesus and let him carry his burdens. This strength, this love, this character, this bravery amazes me everyday. This sweet boy has a hard long road ahead of him, he doesnt know how long he has on this earth, he doesnt know if he will find love, companionship, and his own family to call his own, he doesnt know a lot of things but he still smiles through it all and hopes, prays, and lives the best he can because through Christ all Things are possible for whomever believes in him and Christ will strength him. This little boy who had plans for his life, dreams for his future that have been alter through no fault of his own but with that alter he finds new dreams, new hopes, and plans a new future; He never gives up and he never gives in. This boy is now a man , who I admire so much, who I am privilege to have watch grow, endure, cry, long, love, laugh, and LIVE the last 18 years. He is full of love and empathy, he is full of humor and strength, he is full of hope and life. He is my SON! His life has been a bumpy journey with many hills and valleys but through it all he has been incredible and I AM SO PROUD!!!! He starts his senior year this fall, He is getting his drivers license this summer, He is applying for jobs all over, he is proving that nothing can stop you but yourself. I just am in total awe of him everyday even the days I want to beat some sense into him. He has flaws, he rebels, he isnt perfect but he is my baby boy. HAPPY BIRTHDAY Jason Stoke I couldnt be prouder of you if I tried
Posted on: Sat, 24 May 2014 15:40:49 +0000
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